A visit with my oncologists

Checking in, checking up, checking out!

I’ve been on the road a lot lately, and today is a day to do laundry and repack my bags for the next trip. We’re going to Pittsburgh for donor appreciation luncheons and I’m sure I’ll have a few good stories to tell after our return.

Last night, I returned from the Mayo Clinic after follow-up tests and visits with my oncologists. Thanks be to God, my cancer is still in remission, and I won’t have to return for another checkup for in six months.

Thank you for your prayers and support.

Overall, I’ve generally been feeling good. Still, I had a touch of anxiety heading for the check ups because I didn’t feel ill when they discovered the cancer in the first place. As I drove into Rochester, instead of sickly feelings, my memories of people who visited me in the hospital and at Hope Lodge, places we ate and conversations we had. I recalled fellow patients who offered their support. As I walked through the halls for my appointments, I remembered the initial visits, not knowing my way around, not knowing quite what to expect. Through the grace of God I’ve come a long way.

Like many of us who hit middle age, the doctor did notice rising levels of cholesterol and triglycerides and told me to take it easy on the holiday sweets and treats. He said I need to adjust my eating habits, (and take to heart the healthy school lunch challenge that St. Joseph’s Indian School earned!) and eat more fruits, vegetables and whole grains, and keep sugars and saturated fats to a minimum. He also said, the nerves in my leg have probably healed about as much as they’re going to. I’ll have to give up on fast breaks and stick to a set shot. But all in all, he was very happy with the progress I’ve made.

I enjoyed the gracious hospitality at St. John’s parish, which is literally across the street from the Mayo Clinic. Fr. Jerry and Fr. John have made it a home-away-from-home when I go for check-ups. At the 12:10 mass, I ran into a couple of St. Joseph’s donors who assured me of their continued prayers and a woman who herself was visiting the clinic for cancer treatments. We promised to keep each other in our prayers. My own brush with this illness has made me more aware of others struggling with health issues. I continue to hear from many people each day, requesting prayers and I am very mindful of all those in need of healing.

The drive is long, about 350 miles each way. But after the good news, I traveled back on eagles wings, with spirits soaring.

Back on St. Joseph’s Indian School’s campus, I noticed that three boys, in one family, have been checked out for an extended period of time, and asked if they were going to withdraw. Their home is two hours distant and their grandmother has been critically ill. They’ve gone back home to be of support to her. But they’ve done well at St. Joseph’s and definitely want to stay. They hope to be able to return after Christmas break. In the meantime, our teachers have been sending work home where an aunt is home schooling them for these weeks.

I thought that was a creative and compassionate solution that lets them be with family at such an important time.

Fr. Steve’s updates

I love to read and have lots of time on my hands, but until now, reading has put me right to sleep. This evening, I read for a couple of hours. It felt good to exercise my mind in that way.

Wednesday, June 16, 2010

When you’re recovering from surgery, you have to enjoy the small progress you see each day.

I love to read and have lots of time on my hands, but until now, reading has put me right to sleep. This evening, I read for a couple of hours. It felt good to exercise my mind in that way. While I still sleep a lot, I hope more and more to be able to do a little work and the things I enjoy.

I have been going into the office for two hours or so each day, just to look at mail and messages. With mail, I’ve mostly opened it and put it in an ever-growing pile. Today, I answered everything that came in and knocked a few older cards off my to do list.

Again, a small thing, but if I can do that each day, slow and steady will win the race.

I had lunch in the dining hall with our eighth graders. They’ve been taking high school transition classes for three weeks and are finishing up their program. We have some good students going into our high school program and hope this extra time prepares them for going off campus for their studies at Chamberlain High School.

Fr. Steve’s updates

I met with four of the doctors on the surgical team. My test results show no further problems, but it’s still going to be a complicated surgery.

Monday, May 24, 2010

Fr. Bill and I arrived at the hospital last night.

Mom and dad arrived today to be extra support for the duration of the time I’m here. They’ve been there so many times in the past for me in so many ways, but this will be my first surgery.

I met with four of the doctors on the surgical team. My test results show no further problems, but it’s still going to be a complicated surgery.

The biggest area of concern is what they’ll need to do to the blood vessels in my leg and nerve endings on my spine once they remove the tumor and see how much damage has been done.

They still can’t say if the surgery will take a few hours or all day. They just won’t know until they go in, and I won’t know until I come out!

While roaming the halls in between appointments, I ran into two of the couples I got to know from Hope Lodge.

Bill was in for a follow-up check up, and Robin in for a surgery of her own. I again experienced the caring bond of support that saw me through the weeks of chemotherapy and radiation.

This will be the last time I write for a while, but staff will provide an occasional update here until I’m able to speak for myself.

Thanks for all the prayers and support. It’s been awesome, and I’m confident that, with God’s help, we’re going to come through this OK.

Fr. Steve’s updates

My SCJ community starts each day with morning prayer a little before seven.

Monday, May 17, 2010

My SCJ community starts each day with morning prayer a little before seven.

As I walked down the hill to the chapel, I noticed how the days are getting a little brighter each morning; today, the sun was already peaking over the hill when I left the house.

There was dew on the grass … birds chirping in many harmonies. Campus is quiet before the day starts, and you never know what each day will bring. But, having a serious illness gives you a perspective that life is fragile and precious, and each new day is a gift.

Before prayer, I prayed I will continue to use my time wisely in a way that benefits others.

Besides office work and a trip to the business office, I got to enjoy our 8th graders giving their PowerPoint presentations on figures in history.

I was running late, and they actually finished early. But, the students were really enthusiastic, and had a little class time left, so Cody and Jackie asked if they could do theirs again – a repeat performance. I learned a few new things about John Adams and JFK.

I also learned to appreciated the enthusiasm of a young person who’s put in a lot of work and wants to share.

St. Joseph's Lakota youth presentations

St. Joseph's Lakota youth presentations

Fr. Steve’s updates

My appointments will pick up in the next couple of days, but today was a quiet one after early morning radiation. I have great plans and energy when I start the day, yet it’s a struggle of the will to make the effort and accomplish what I hope to.

Tuesday, April 20, 2010

Slowly I’m tidying things up and trying to get things in order as the Friday checkout time draws near. My appointments will pick up in the next couple of days, but today was a quiet one after early morning radiation. I have great plans and energy when I start the day, yet it’s a struggle of the will to make the effort and accomplish what I hope to.

The scriptures from Acts of the Apostles the past days have been about Saint Stephen’s faith during trial:  “Into your hands I commend my spirit, O Lord.” I strive for more of that kind of attitude each day.

But when facing serious illness it’s easy to get caught up in angst and worry. It’s harder to keep hope afloat and love alive. Yet that’s God’s calling.

Tonight was the last Tuesday potluck. I’m not a fancy cook, but roast beef that simmers all day in the crock pot always comes out tender and tasty, so that was my contribution.

Those of us who finish treatment this week got the chance to share a few words with those who remain, and have been part of our journey. My life in religious community has been my greatest support over the years. Being part of Hope Lodge has also been a positive experience of community – a time of mutual listening, sharing and support. For that I am most thankful.

We thrive when experiencing such care and it’s up to all of us to make it happen wherever we find ourselves.

Fr. Steve’s updates

Another sleepy day. I have no weekend appointments, so it worked out well to rest. I did go out to an afternoon movie to laugh and let my mind wander to more relaxing things. Then I made a big dent in long overdue emails.

Saturday, April 17, 2010

Another sleepy day. I have no weekend appointments, so it worked out well to rest. I did go out to an afternoon movie to laugh and let my mind wander to more relaxing things. Then I made a big dent in long overdue emails.

It’s quiet around Hope Lodge. Many people who live within a shorter driving distance have gone home for the weekend.  I washed a couple of loads of clothes , but didn’t see anyone else in the laundry the whole time.

At lunch I talked to a newcomer who just arrived for treatment for pancreatic cancer, which has one of the lowest cure rates. But he’s facing the disease with courage and faith. There’s not a whole lot of reason to feel sorry for yourself when you see so many other people suffering much more. At supper I sat with a woman who’s husband is still hospitalized, which makes for some very long days for her.

After the chemo, my appetite isn’t all that good. I have to force myself to eat because I know I need to, not because I want to or enjoy it. I know in a few days the taste buds will come back strong, and I’ll be back to munching all the time.