chemotherapy – Page 26 – St. Joseph's Indian School

Fr. Steve’s updates

When someone finishes the last of their radiation treatments they are invited to give the bell a ring – a sign of celebration, hope, and probably also relief!

Friday, April 9, 2010

On the wall of the radiation waiting room is a bell.

When someone finishes the last of their radiation treatments they are invited to give the bell a ring – a sign of celebration, hope, and probably also relief!

When I first started radiation I was in a waiting room full of strangers, but as the weeks go on, I know more and more of the faces here. Several of the folks reside with me at Hope Lodge, and the time waiting passes quickly as we chat and catch up with each other.

Today, Gene from Oklahoma and Tony from Illinois finished their treatments and a group of us showed up in support as they rang the bell.

Tony had his wife on the cell phone so she could hear the joyful peals. Gene let out a loud YIPPEE! It sounded like a cook calling the cowpokes in for dinner!

We took pictures and had hugs and handshakes all around. I’m impressed by the spirit of camaraderie, and seeing others finish up gives all the rest of us hope.

I’m impressed by the spirit of camaraderie,
and seeing others finish up gives all the rest of us hope.

Fr. Steve’s updates

I am so thankful for our many donors who make sacrifices for the children so we have the resources to run our programs and meet the needs of our students and the outreach programs on the reservations

Thursday, April 8, 2010

Back at St. Joseph’s, our board of directors met today. It felt odd not to be leading the agenda. I had treatment and consultations in the morning, so I had to limit my participation to phoning in during the afternoon.

Our budget for next year was approved. Many charities have really suffered through the economic downturn, but we’ve continued to be blessed with good resources.

I am so thankful for our many donors who make sacrifices for the children so we have the resources to run our programs and meet the needs of our students and the outreach programs on the reservations.

A youth group from the Lutheran church, mostly junior high students, served us supper tonight. I was impressed with the seventh grade boy who made the tater tot casserole on his own.

One of the girls pulled out a prayer card and did a quick interview with me so she knew who she was going to be praying for. The church organist played some lively tunes on the piano.

I was impressed with the way the chaperones and youth minister encouraged the young people to interact and mingle – and to teach them the value of reaching out to others.

I’m starting to feel the fatigue factor so many people said I would encounter by the third week. Energy has deserted me.

But, I know friends, family and the Lord will not desert me, which gives me strength to keep going.

Fr. Steve’s updates

I passed the half-way point in my radiation treatments – 13 down and 12 to go. I met with my radiologist to review how things are going. I asked about the sun-burned look of some patients, but since my radiation is directed deep inside, that probably won’t happen with me.

Wednesday, April 7, 2010

Today, I passed the half-way point in my radiation treatments – 13 down and 12 to go.

I met with my radiologist to review how things are going. I asked about the sun-burned look of some patients, but since my radiation is directed deep inside, that probably won’t happen with me.

My side effects remain light and manageable, so the consultation was fairly short. While my doctors are pleased that it’s going well so far, I am thrilled.

We also have a date for surgery – May 25. The bad part is I’ll miss 8th grade graduation. But, I finish radiation April 23, and I get to be back on campus for a full month of all the end-of-the-year activities that fill up the last weeks of the school year.

Jim, another man from Chamberlain, is also here for treatments. We ran into each other in the halls of the hospital today. It was nice to see a familiar face and catch up on some news from back home!

Fr. Steve’s updates

At our Tuesday night potluck all the people who’ve arrived in the last week stand up and introduce themselves. Anyone who is finishing their treatments and is preparing to go home also gets the chance to impart a few words of wisdom to the group.

Tuesday, April 6, 2010

Bob, from Nevada, was here for over two months. Because of distance, he didn’t get to go home on weekends. But, he made the best of his time and leaves with many new friends.

He advised all of us to get out of our rooms and down to the common areas, where you meet folks from all different backgrounds and professions. One of his favorite new friends was the man who vowed to make at least 5 people smile every day – and usually easily accomplished that by lunch time.

We are our brothers and sisters’ keepers, and caring for one another is what we’re made for.

We are our brothers and sisters’ keepers,
and caring for one another is what we’re made for.

Fr. Steve’s updates

I’ve received piles of get well cards and letters. People share their own struggles to overcome, offer prayers and hope, advice and recipes, cartoons and pictures, prayer books and medals, and even some original art work.

Monday, April 5, 2010

When Brother Clay left this morning, he made sure I had the large box with my mail from the past three weeks.

Again, I’ve received piles of get well cards and letters. People share their own struggles to overcome, offer prayers and hope, advice and recipes, cartoons and pictures, prayer books and medals, and even some original art work.

I was torn between reading through them and watching the White Sox opening day on TV. So, I did both.

Baseball is a leisurely game, and doesn’t require constant attention, so I sat down in the common room with my box and started reading. When the game got exciting, I paid closer attention, and during the lulls, I read a few more notes.

Some were from names I recognized right away, but many shared this common sentiment – “although we’ve never met, through your letters I feel like we’re old friends and I just wanted you to know we’re thinking of you …”

There are so many folks who, over the years, have been such a blessing to St. Joseph’s and now are a real blessing to me.

I had the first seven innings to myself and the letters. The last two innings, I was joined by a couple of other sports fans who came back from their treatments; the talk turned more to baseball and a little to sharing our medical stories.

My team won, and it was a lovely way to spend a good part of the afternoon.

Fr. Steve’s updates

I grew up in Indiana, and seeing Butler’s improbable run to the championship game has been exciting. It continues the tradition and history we fondly call Hoosier Hysteria.

Saturday, April 3, 2010

I’m a person of many lists, and usually, before turning in each night, I make a list of what I want to accomplish the next day. I seldom get everything on the list done, but writing goals down helps me make progress and keep my eye on what is needed.

But, today was a wide open day, with no treatments or appointments, and no list. I took it easy, read quite a bit and went to a mall to buy a new pair of walking shoes. Then, proceeded to put a few miles on them.

I am noticing more tiredness from the radiation. Some days it’s hard to coax myself out of bed. Today, it was nice not to have to get out of bed until the tiredness was off of me.

I also got several phone calls from family and friends, knowing I’d be busy on Easter, and wanting to touch base and offer prayers and support, which means so much.

Tonight, the basketball fan in me had to watch the NCAA tournament with a few other sports fans who congregated around the common TV. I grew up in Indiana, and seeing Butler’s improbable run to the championship game has been exciting. It continues the tradition and history we fondly call Hoosier Hysteria.

Fr. Steve’s updates

There’s comfort in walking a journey that others have taken as well. Robin had surgery some time ago and spoke highly of the surgeon that will also be operating on me.

Friday, April 2, 2010

When I went downstairs to the common room to read the morning paper and have a cup of tea, I met a couple – Robin and Gary – who just arrived at Hope Lodge this week. After talking about what we do and where we’re from, we compared cancer stories.

Robin also has sarcoma, and it’s the first time either of us has met a kindred soul sharing this disease. There’s comfort in walking a journey that others have taken as well. Robin had surgery some time ago and spoke highly of the surgeon that will also be operating on me.

Good Friday services took on new meaning for me.

I often have a hard time getting into the suffering and agony part. Like most of us, it’s part of life I don’t much like to think about.

This year is different for me because my illness has opened my eyes wider to the reality of suffering that so many people face on a daily basis. The cross is more real as well. The whole point is to take our burdens to the cross in prayer and find the strength to daily pick up our cross and courageously walk with it, through it, and even in spite of it, in faith.

Brother Clay arrived this afternoon for a visit. He caught me up on the people and events at school, and we shared a movie and evening meal. I appreciated his company.

Fr. Steve’s updates

While I’m lying on the table receiving radiation, I’ve found myself using those 15 minutes for prayer. Some are petitions as I think about family and friends who need strength to face their own struggles. Some are just moments of thanks for the blessings that come my way each day.

Thursday, April 1, 2010

While I’m lying on the table receiving radiation, I’ve found myself using those 15 minutes for prayer. Some are memorized prayers I’ve said since I was a child. Some are petitions as I think about family and friends who need strength to face their own struggles. Some are just moments of thanks for the blessings that come my way each day.

And, I pray for healing. Instead of the treatments increasing my anxiety level, I come away refreshed and blessed.

Tonight for Holy Thursday, I con-celebrated mass at the local parish. Sometimes it’s difficult to find people willing to get their feet washed, but here many folks eagerly participated. That ritual does inspire in me compassion and renews God’s call to service.

This community attracts people from all over the world, and the prayer intentions reflected that. Parish members offered their petitions in English, Arabic, Portuguese, Ukrainian, Lingala, Gaelic and Spanish. Despite our differences, we’re all united as members of God’s family.

Fr. Steve’s updates

Today was my regular radiation and some blood work to see how my blood cell counts are holding up. I didn’t even need a jacket today as the temperatures climbed into the upper 70s. I walked for almost an hour after the doctors got done with me.

Wednesday, March 31, 2010

Today was my regular radiation and some blood work to see how my blood cell counts are holding up.

I didn’t even need a jacket today as the temperatures climbed into the upper 70s. I walked for almost an hour after the doctors got done with me.

As I walked by the radiation building, I heard “Hey, Steve!” and at first, I thought it must be someone else. But, it was Gail from my hometown who was on break and came out for fresh air. We walked a few blocks together before she had to get back.

I stopped to browse in a book store. When I do, I get both excited (thinking about all the subjects I would love to learn more about) and discouraged (so many books, so little time!). But I did come home and spend time with the books I already brought, reading some theology, history, child care journals and a work on improving my management skills.

It’s a big help to have a book going when I’m waiting on an appointment or just feeling bored. The drain for me right now is more emotional than physical. Going through treatments day after day takes a toll on your psyche, even when the body is feeling OK.

Fr. Steve’s updates

One week of radiation down and four to go! Getting well from this cancer is not a sprint, but more like a marathon that requires the discipline of a steady pace.

Friday, March 26, 2010

For lunch the local community of Franciscan Sisters invited me to their place.

Asissi Heights houses their retirement community, administration, retreat center and much more. I met one sister who was 102 and was so impressed thinking of all those years of dedicated service to God’s people by these women of faith.

I was impressed to learn of their history in helping found the Clinic and of the many great works they are involved in today to help serve God’s people.

The clinic schedules early appointments on Fridays for those who are heading home for the weekend. Since it’s a six hour trip for me, I won’t go home that often, so I didn’t have treatment until this afternoon.

One week of radiation down and four to go!

Fr. Bernie keeps reminding me to “hang tough.” Getting well from this cancer is not a sprint, but more like a marathon that requires the discipline of a steady pace.

A group of nursing students visited Hope Lodge and brought a tasty variety of breads and soups for supper. They volunteer once a month and brought good cheer to our space. Many residents have already gone home for the weekend and will return Monday. But there are plenty who stay because they live too far away or are too weak to comfortably travel.

Some folks have treatments throughout the weekend. Though our group at supper was small, the time with these generous volunteers was most appreciated.